Yoni's Bar Mitzvah

Jamey started maintenance today!! Yeah!!!! His counts were WAY up and he is feeling pretty good. Of course that means that he is back on chemo now, so that won't continue. While he is on long term maintenance (LTM), he will be taking quite a concoction of pills. He takes one chemo every day (two pills four days per week, one and one-half three days - nowhere near when he eats), one chemo once a week (9 1/2 pills on Wednesdays), and his steroids five days a month (four pills in the morning and three and one-half in the afternoon - near food). It's dizzying trying to keep up with everything, but the alternative isn't an option. I'm sure we'll get used to it at some point and it will become second nature. Right now we're nervous that we'll mess up something.

Last weekend we went to our nephew, Yoni's, bar mitzvah. Yoni was fantastic. We are so proud of him. David's sisters, our niece and her family were here from Israel, and another niece was in from Chicago. We had a wonderful time! We stayed up until midnight dancing and singing. It was really wonderful. One of the highlights of the bar mitzvah was when our nieces and nephew sang two beautiful Israeli songs. I've tried posting them, but am having some trouble. I'll post when I can.

Tuesday

Jamey was feeling okay this morning and early afternoon (he beat us all at bowling!), but by the late afternoon he was feeling pretty poorly. He had a terrible headache and he went to bed very early. I think it's because he started chemo again after a few weeks, and perhaps the effects from the steroids. It is so difficult for him - I hope he feels better tomorrow.

I can't wait until this entire nightmare is over. Three more years . . . . (at least until the chemo is done), then five more years . . . (until he's considered cured).