Thursday, March 6, 2008
Steroid Week
This has been a pretty bad week for Jamey. He had his broviak out on Tuesday, and he's been on steroids since Monday. It's really taking its toll on him. He's feeling really bad - can't eat, is very itchy, just feeling horribly. We feel so bad for him - he inconsolable. He tries to be so good, but he just feels so rotten. I think he'll stay home from school tomorrow. I can't wait until this round of steroids is done.
Monday, March 3, 2008
Monday, March 3, 2002
I could not login. Here are my write-up for today.
It has been about a week since we wrote. Things has been going well this week. Jamey seems to be in a good place and getting used to the new medicines which he will take for the next 3 years. It is an adjustment for all of us but definitely a lot better then what the first 8 months have been.
Today Jamey had chemo at the clinic. We have a new doctor because our old one went to work at the National Institutes of Cancer. He seems very nice (we are lucky because he is a friend of a friend and has been following Jamey's progress all along). Jamey seemed to be doing well, although a bit tired. This is his week on steroids, so it will probably be a difficult one for him. Tomorrow he is getting the broviac out which is great. He is nervous about this: it means shots and needles. It's good in the long run, though. Not having it will allow him the freedom to play and do sports and other activities which he has been limited to. This is a milestone for us. It is hard to believe that we have reached this time - it seems like yesterday (and forever) that we started this journey. Reflecting about it over the weekend I can't believe that we are at this juncture. It is still very emotional for us - to talk about our child and cancer. Some days I still can't wrap my brain around it.
Jamey had a special program at Temple on Friday night. He participated in the service; read in Hebrew and was part of a play. It was nice seeing him getting involved again. Noah had his birthday over the weekend ate a donuts place. It was fun but the place was very small for all the kids we had. They also ate way too many donuts. Noah also had a game today; we won 9:3 and going to the playoff next week. This should be an interesting game. We are gearing up for the Spring season.
We are getting ready for our trip to Spain and getting a little nervous. We started to pack so we can see how many suitcases and what we need to pack. I went to Canada for business for few days so I left Karen alone for few days with the kids. As always she Took care of things. I don’t like to be away much but have to travel every 4-6 weeks.
Jamey decided to try Camp Simcha over the summer. It is a sleep away camp in NY for kids with cancer. We are not sure we are ready for him to sleep away, but it will be good for him to be with other kids who have experienced what he has. He should find some solidarity in numbers. He hesitated at first but now seems to be ready. The boys will also go to the farm for a week to enjoy their grandparents.
It has been about a week since we wrote. Things has been going well this week. Jamey seems to be in a good place and getting used to the new medicines which he will take for the next 3 years. It is an adjustment for all of us but definitely a lot better then what the first 8 months have been.
Today Jamey had chemo at the clinic. We have a new doctor because our old one went to work at the National Institutes of Cancer. He seems very nice (we are lucky because he is a friend of a friend and has been following Jamey's progress all along). Jamey seemed to be doing well, although a bit tired. This is his week on steroids, so it will probably be a difficult one for him. Tomorrow he is getting the broviac out which is great. He is nervous about this: it means shots and needles. It's good in the long run, though. Not having it will allow him the freedom to play and do sports and other activities which he has been limited to. This is a milestone for us. It is hard to believe that we have reached this time - it seems like yesterday (and forever) that we started this journey. Reflecting about it over the weekend I can't believe that we are at this juncture. It is still very emotional for us - to talk about our child and cancer. Some days I still can't wrap my brain around it.
Jamey had a special program at Temple on Friday night. He participated in the service; read in Hebrew and was part of a play. It was nice seeing him getting involved again. Noah had his birthday over the weekend ate a donuts place. It was fun but the place was very small for all the kids we had. They also ate way too many donuts. Noah also had a game today; we won 9:3 and going to the playoff next week. This should be an interesting game. We are gearing up for the Spring season.
We are getting ready for our trip to Spain and getting a little nervous. We started to pack so we can see how many suitcases and what we need to pack. I went to Canada for business for few days so I left Karen alone for few days with the kids. As always she Took care of things. I don’t like to be away much but have to travel every 4-6 weeks.
Jamey decided to try Camp Simcha over the summer. It is a sleep away camp in NY for kids with cancer. We are not sure we are ready for him to sleep away, but it will be good for him to be with other kids who have experienced what he has. He should find some solidarity in numbers. He hesitated at first but now seems to be ready. The boys will also go to the farm for a week to enjoy their grandparents.
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